PRIVATE RN ADVOCACY AND CARE COORDINATION

JUPITER AND PALM BEACH COUNTY, FL | 561-229-3744

FAMILY STORIES

What changes when
someone is watching

Every family comes to us with a different story. Here are a few that show what having an experienced nurse in your corner can change.

Each story below is labelled. Some are real families who gave permission. Some are illustrative examples drawn from situations we see often.

“I don’t think Mom needs home health care or someone with her all day. I just need someone I trust to put eyes on her and help me understand what’s actually going on.”

THE SITUATION

An adult daughter living several states away was growing worried about her 78-year-old mother, who lived on her own in Florida. Her mother always said, “I’m fine. You don’t need to worry about me.” But on the phone, the daughter noticed small things. Her mother had confused her medications, missed a follow-up, and seemed unsure about her doctors’ instructions.

HOW WE HELPED

A Nurse Ambassador met her mother at home and completed a Living Life Assessment, reviewing her medications, history, recent appointments, physician instructions, and the concerns of both mother and daughter. Together we organized and reconciled her medications, created an easy routine, prepared questions for upcoming appointments, identified services that could help her stay independent, and set a schedule of regular visits. With her mother’s permission, the daughter received an update after each one.

THE RESULT

Mom kept living independently, without feeling that her family was taking over her life. And instead of wondering “Is Mom really okay?”, her daughter had someone local she could call.

“I know there are benefits for my child. I just don’t know where to start.”

“People keep telling me there are benefits for special needs kids. But what benefits? Where do I apply? Who do I call?”

THE SITUATION

The mother of a 15-year-old with significant developmental disabilities had spent years focused on one thing: caring for her child. She’d heard other parents mention programs and benefits, but no one had ever explained what her family might be eligible for. Her doctor had never mentioned any of it.

HOW WE HELPED

A Nurse Ambassador learned about her child’s diagnoses, daily needs, current care, insurance, school services, and benefits already in place. Then we built a personal roadmap covering programs worth exploring, from Medicaid waiver programs and respite care to SSI, ABLE accounts, and planning for adulthood, and helped her organize the documentation.

THE RESULT

For the first time, she had a plan: what to prioritize, what she’d need, and where to begin. And she no longer felt she had to figure out an incredibly complicated system on her own.

GINEEN’S OWN FAMILY, SHARED BY GINEEN

Why this work is personal: Alexa’s story

When my daughter Alexa was three, I signed her up for Florida’s APD iBudget program. For people with developmental disabilities, it opens the door to Medicaid based on the disability, not the family’s income. For Alexa, that has meant her doctor visits, surgeries, medications, and dental care are covered. Her health plan even includes an over-the-counter benefit most families never realize they have.

Through the waiver, she also receives respite care and a personal care assistant who comes to our home each week. And we opened an ABLE account for her when she was little, so she can save for her future without putting her benefits at risk.

None of this came with instructions. I learned it the hard way, one phone call and one form at a time. Today I meet parents at school pickup whose children are 14 and 15 and who have never heard of these programs. That’s why I do this. No family should have to figure it out alone.

GINEEN ORTEGA, RN, BSN | FOUNDER

His savings had to stay under a strict limit, and he didn’t know how to plan around it.

THE SITUATION

A man in his late forties, living with a condition that affects his mobility, wanted to stay independent at home. But to keep receiving support, his savings had to stay under a strict limit, and he didn’t know how to plan around it.

HOW WE HELPED

Gineen helped him apply for long-term care support at home and set up an ABLE account, a savings account for people with disabilities. The money is still his, and he controls it. It can be used for disability-related expenses like clothing, equipment, special food, medications, and travel, and it generally doesn’t count against his eligibility for benefits.

THE RESULT

Support at home, savings he controls, and a plan for the future.

IN THEIR OWN WORDS

Family reviews, coming soon

Keystone is new, and we would rather show you nothing than show you something we made up. As our first families finish their first months with us, their words will appear here. Build note: this section is ready to receive three testimonials. It can stay hidden until the first reviews arrive.
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